Rare diseases

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  • Rare diseases (70)

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Leading experts, collaborating with us, develop a variety of educational programmes in the field of rare diseases. Explore the latest programmes to support your clinical decision-making.

Programmes in Rare diseases

Showing 1 to 6 of 70 results
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podcast Video podcast
Oncology Endocrinology Rare diseases 
Exploring the role of targeted radiopharmaceutical treatment in NETs

PRRT and emerging strategies in neuroendocrine tumours

Experts
Prof. Ken Herrmann, Dr Heloisa Soares, Oncology Brothers (Moderators)
Endorsed by
NANETS
CommNETs Neuroendocrine Cancer UK
  • download Downloadable
    Resources
  • clock 21 MIN
  • calendar Oct 2025
  • Non-accredited Independent Medical Education
NET CONNECT GI CONNECT
Educational programme supported by an Independent Educational Grant from ITM.
animated-video Animated Video
Endocrinology Rare diseases Bone diseases 
Rethinking hypophosphatasia (HPP) and systemic impacts of deficient alkaline phosphatase activity

Understanding the mechanism of disease of hypophosphatasia

  • clock 4 MIN
  • calendar May 2025
COR2ED
This programme has been initiated and funded by Alexion Pharmaceuticals and is intended for healthcare professionals only.  The Alexion logo is a registered trademark of Alexion Pharmaceuticals, Inc.©2024 Alexion Pharmaceuticals, Inc. All rights reserved.GL/UNB-H/0063 – May 2025  
podcast Video podcast
Endocrinology Rare diseases Pediatrics 
Short-stature conditions, including SPIGFD

Pediatric endocrinologists discuss patient cases and share insights on clinical practice 

Experts
Prof. Andrew Dauber, Dr Marta Ramón Krauel
Endorsed by
The Magic Foundation
  • download Downloadable
    Resources
  • clock 24 MIN
  • calendar Dec 2024
  • Non-accredited Independent Medical Education
PE CONNECT
Educational programme supported by an Independent Educational Grant from Ipsen.
podcast Video podcast
Oncology Rare diseases 
Neuroendocrine tumours (NETs) shared decision-making: Exploring the patient journey and individualising treatments

Experts
Dr Mohid S Khan, Sally Jenkins
Endorsed by
CommNETs
NANETS
Neuroendocrine Cancer UK The Healing NET Foundation
  • download Downloadable
    Resources
  • clock 23 MIN
  • calendar Sep 2024
  • Non-accredited Independent Medical Education
NET CONNECT
Educational programme supported by an Independent Educational Grant from Ipsen
micro-learning Micro learning - Video, slides and more
Oncology Endocrinology Rare diseases 
Tools for optimising treatment & management of advanced NETs

Maximising outcomes for patients with advanced neuroendocrine tumours 

Experts
Prof. Emily Bergsland, Prof. Louis de Mestier
Endorsed by
NANETS
Neuroendocrine Cancer UK CommNETs The Healing NET Foundation
  • download Downloadable
    Resources
  • clock 5 MIN
  • calendar Jul 2024
  • Non-accredited Independent Medical Education
NET CONNECT
Educational programme supported by an Independent Educational Grant from Ipsen.
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