Extrapulmonary neuroendocrine carcinoma (EP-NEC) is a rare and complex cancer that can be difficult to recognise, diagnose, and treat. This short video helps patients and care partners understand the disease, including what to expect from diagnosis and treatment, the urgency needed, and where support is available. It is designed to help patients and their families navigate this challenging condition. 

 

Clinical takeaways

  • EP-NECs are a complex and aggressive type of neuroendocrine cancer, necessitating early diagnosis and intervention to improve outcomes 
  • A diagnosis of EP-NEC can lead to feelings of loneliness and confusion among patients and care partners, highlighting the importance of connecting with specialised patient organisations for support 
  • Targeted therapies represent a promising area of investigation in EP-NEC treatment, with ongoing studies exploring their potential in this challenging area 
  • To increase awareness and understanding of the complex nature and burden of disease associated with EP-NEC 
  • To share patient and HCP perspectives on obtaining a diagnosis of EP-NEC and subsequent treatment experiences 
  • To understand the potential future treatment options in EP-NEC 

Meredith is a highly driven and dedicated health professional who thrives on delivering world class care to neuroendocrine cancer patients and enhancing the skills of other health professionals to deliver this care nationally and internationally. 

She has been involved in Oncology for over 40 years in metropolitan, rural, international, public, and private settings. 

Meredith joined NeuroEndocrine Cancer Australia (NECA) in 2018 in the role of national Project Officer / CRA / Telehealth Nurse. She has had principal roles in the writing of the NET GP / Nurse Education Modules and the NET Optimal Care Pathway. Meredith became the CEO of NECA in October 2022. Currently Meredith is on the Expert Advisory Group for the Australian Cancer Nurses Navigation program and the working group for Specialist Support Service. 

Areas of Advocacy in the past 18 months have been presenting at the Senate Inquiry for Equity of Access For Diagnostics and treatments for Rare and Less Common Cancers, Including Neuroendocrine Cancers and also lobbying for the Von Hippel Lindau community for the recommendation and listing of Belzutifan on the PBS.  

She is also Chair of the Finance and Risk Audit Committee and on the Board of Directors for Cancer Nurses Society of Australia (CNSA), Board of Directors for International NeuroEndocrine Cancer Alliance (INCA) President-Elect and Chair of the INCA Research Committee. 

Programme summary
  • clock Duration 5 MIN
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Other episodes of this series
Navigating extrapulmonary neuroendocrine carcinoma (EP-NEC)

Navigating extrapulmonary neuroendocrine carcinoma (EP-NEC)

Insights for patients and care partners 

Current Episode
Thriving beyond an EP-NEC diagnosis

Thriving beyond an EP-NEC diagnosis

Perspectives on treatment and care 

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This educational programme is supported by an Independent Educational Grant from Boehringer Ingelheim 
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This educational programme is supported by an Independent Educational Grant from Boehringer Ingelheim 
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NET CONNECT is an initiative of COR2ED, supported by Independent Educational Grants from Ipsen, Eisai Europe Limited, ITM and Boehringer Ingelheim

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