Extrapulmonary neuroendocrine carcinoma (EP-NEC) is a rare and complex cancer that can be difficult to recognise, diagnose, and treat. This short video helps patients and care partners understand the disease, including what to expect from diagnosis and treatment, the urgency needed, and where support is available. It is designed to help patients and their families navigate this challenging condition.
Clinical takeaways
- EP-NECs are a complex and aggressive type of neuroendocrine cancer, necessitating early diagnosis and intervention to improve outcomes
- A diagnosis of EP-NEC can lead to feelings of loneliness and confusion among patients and care partners, highlighting the importance of connecting with specialised patient organisations for support
- Targeted therapies represent a promising area of investigation in EP-NEC treatment, with ongoing studies exploring their potential in this challenging area

Downloadable
4 MIN
Nov 2025
