Thriving beyond an EP-NEC diagnosis

Jessica Thomas, LCSW is a patient education leader and licensed clinical social worker with more than 20 years of experience walking alongside individuals and families living with cancer and chronic illness. She currently serves as Director of Patient Education at the Neuroendocrine Tumor Research Foundation (NETRF), where she helps turn the latest research and medical knowledge into clear, practical resources for people affected by neuroendocrine cancer. 

Jessica’s work focuses on meeting patients and caregivers where they are—acknowledging the uncertainty, fear, and questions that come with a diagnosis, while also helping people feel informed, supported, and empowered. She leads educational programs that include national conferences, virtual and in-person events, podcasts, patient guides, and digital tools, all designed to make complex information more understandable and usable in everyday life. 

Before joining NETRF, Jessica spent much of her career as a mental health clinician, supporting individuals coping with life-changing diagnoses, long-term treatment, and the emotional impact of serious illness. That clinical foundation continues to shape her approach to patient education, with an emphasis on resilience, communication, and quality of life—not just disease management. 

Jessica is deeply committed to amplifying patient and caregiver voices and believes that education is most powerful when it is compassionate, accessible, and grounded in real lived experience.