A short animation video to help girls with a bleeding disorder (in the family) understand what to expect from the start of menstruation and what can be done about heavy menstrual bleeding


Subtitles in English, French, German, Spanish, Dutch and Japanese are available by clicking on ‘CC’ within the video controls

Talking about menstruation can be intimidating for young girls. Some patients may prefer to avoid the topic and heavy menstrual bleeding may even be normalised in some families.

This short animation video, tailor made for, and created with young girls with a bleeding disorder, will support young girls with a bleeding disorder (in the family). It will help your patients and their families prepare for menarche and understand what to expect from menstruation. 

Do you see women or girls with heavy menstrual bleeding or any other bleeding symptoms? Refer to our first video in the series, podcast series and micro e-learning programme to learn more.

Azusa Nagao, M.D., M.Sc., serves as a hematologist at Ogikubo hospital, Tokyo, Japan that is the biggest hemophilia treatment center. Dr Nagao’s clinical research is focused on problems of women and girls bleeding disorders, ageing problems of hemophilia patients, and musculoskeletal ultrasound systems. Even though Dr Nagao is a young investigator, she has authored and co-authored more than 20 scientific publications, been a speaker at many national and international meetings and congresses.

Dr Azusa Nagao has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Bayer, Chugai, CSL, Fujimoto, JB, KMB, Novo Nordisk, Pfizer, Sanofi and Takeda. 

Debra Pollard is Lead Nurse Specialist, Advanced Nurse Practitioner at Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free Hospital, London, UK. Debra is also Director of Education at Haemnet, a member of the European Haemophilia Consortium’s Medical and Scientific Advisory Group, the UK’s Haemophilia Society as well a member of the Women and Bleeding Disorders Working Group of the EAHAD.

Debra Pollard has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

BioMarin, CSL Behring, Novo Nordisk, Roche-Chugai, Sobi and Takeda. 

Prof. Rezan Abdul-Kadir is a consultant Obstetrician and Gynaecologist, specialised in haemostatic disorders in women. She trained in obstetrics and gynaecology in London and accomplished an MD degree from University of London for her thesis on inherited bleeding disorders in women. She started the first Joint multi-disciplinary clinic for women with bleeding disorders in 2002 and has been leading the service at Katharine Dormandy Haemophilia Centre at the Royal Free hospital. The clinic is internationally renowned for its model of care, its research output in the field and as an international training centre. Her extensive research publications have provided evidence for the prevalence and variety of women’s bleeding disorders and their management, which have established an entire new subspecialty for provision of comprehensive care to this large group of women. She led several national and international guidelines and co-authored a book entitled “Inherited Bleeding Disorders in Women” first edition published in 2009; second edition in 2019. She is currently leading several multi-disciplinary research projects collaborating with international academic teams and scientists in the field of bleeding disorders in women. She has given presentations at numerous international congresses and has authored over 200 peer-reviewed publications. In addition to research and setting the service model, Prof. Rezan Abdul-Kadir has been in the forefront of advocacy for women’s issues in families with bleeding disorders. She led the establishment of “Women Bleed Too project” with the UK Haemophilia society in 2005; and has been chair /member of its medical advisory board since then. This project has become a model for increasing awareness and promoting wellbeing of women and has been replicated in the USA, Canada and in most of Europe.  She also plays a leading role in international medical societies, patients’ organisations and NGOs advocating women’s health issues in thrombosis and haemostasis. She is a co-founder and chair/co-chair of committees on women’s health for International Society of Thrombosis and Hemostasis, World Federation of Hemophilia and European Association for Haemophilia and Allied Disorders.

Dr Sarah O’Brien is Associate Professor of Pediatrics at The Ohio State University College of Medicine.  She leads a multi-disciplinary young women’s hematology clinic at Nationwide Children’s Hospital.  Her clinical and research interests include the evaluation and diagnosis of mild bleeding disorders and the intersections between hematology and women’s health. 

Dr Sarah O'Brien has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Bristol Myers Squibb. 

Dr Michelle Lavin is a Consultant Haematologist in the National Coagulation Centre in St. James’ Hospital, Ireland and a Principal Investigator in the Irish Centre for Vascular Biology in RCSI. She serves as a Co-Chair on the Von Willebrand Factor Scientific Subcommittee of the International Society on Thrombosis and Haemostasis (ISTH) and on the European Association for Haemophilia and Allied Disorders (EAHAD) Women and Bleeding Disorders Committee. Dr Lavin’s research focuses on improving diagnosis and care for women with bleeding disorders and the management of Von Willebrand Disease.

Dr Michelle Lavin has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Tremeau Pharmaceuticals and Sobi. 

Roseline d’Oiron is a Clinician Investigator and Associate Director at the the Reference Centre for Haemophilia and Rare Congenital Bleeding Disorders at Bicêtre Hospital AP-HP and University of Paris-Saclay, France. She is also responsible for Specialist training for the master’s degree in haematology at University Paris VII. She is the current elected president of the Steering Committee of the FranceCoag Network, a national registry of bleeding disorders, a member of the European Haemophilia Consortium’s Medical and Scientific Advisory Group and a member of the Women and Bleeding Disorders Working Group of the EAHAD.

Dr. Roseline d'Oiron has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Biotest, CSL Behring, LFB, Novo Nordisk, Octopharma, Pfizer, Roche, Sobi and Takeda. 

 

 

Women and Girls Bleed too – Recognising Bleeding Disorders Podcast

Episode

1

of

episodes
HEMOSTASIS CONNECT
Women and Girls Bleed too – Recognising Bleeding Disorders Podcast

A podcast series on Bleeding Disorders in Women and Girls, aiming to provide first-line healthcare professionals with insights on recognising, diagnosing, and managing bleeding disorders in women and girls.

Experts
Dr Sarah O'Brien, Dr Michelle Lavin
  • clock 25 MIN
  • calendar Oct 2021
This educational programme is supported by an Independent Medical Education Grant from Takeda
Programme summary
  • clock Duration 2 MIN
  • clock Language(s) flag
Watch the video now
Other episodes in this series
Raising Awareness of Heavy Menstrual Bleeding

Raising Awareness of Heavy Menstrual Bleeding

Episode 1: A short video to use with patients in your clinical practice

Preparing Girls with a Bleeding Disorder for Menarche

Preparing Girls with a Bleeding Disorder for Menarche

Episode 2: A short video to use with patients in your clinical practice

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HEMOSTASIS CONNECT is an initiative of COR2ED, supported by Independent Medical Educational Grants from Pfizer, Takeda, Viatris and Pentapharm.

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