In this video, grandmother Sheila recounts her haemophilia diagnosis and shares her hopes for her daughter and granddaughter.
You'll also hear from Nicola, Sheila's daughter, and Tegan her granddaughter, who both share their own stories of life with haemophilia, including starting and managing periods, the risk and fear of injury, the importance of preparation around pregnancy and childbirth, challenges receiving medical care and finding support within the community.
Use with patients in your clinical practice, share the full video or skip to a selected clip below.
Subtitles in English, French, German, Spanish and Japanese are available by clicking on ‘CC’ within the video controls
Contrary to common belief, bleeding disorders do occur in women and girls, and have a major impact on their quality of life
It is important to have an individual medical care plan in place for both children and adults with bleeding disorders to advise on care at school, in work, during pregnancy, for surgery, or in an emergency
Ensure women and girls with bleeding disorders are aware that support is available through patient organisations
Don't have time to watch the whole video? Jump to the selected highlights below:
- Medical Care
Subtitles in other languages coming soon