Episodes 2 and 3: ASBMR 2022 Rare Bone Disease Highlights
Episodes 2 and 3: ASBMR 2022 Rare Bone Disease Highlights
In the second and third episodes of this podcast series, discover conference insights from the clinician and patient advocate perspectives
In the second and third episodes of this podcast series, discover conference insights from the clinician and patient advocate perspectives
Prof. Eric Rush, Ms. Inês Alves, Ms. Tracy Hart
Prof. Eric Rush (Children’s Mercy Hospital) and patient advocates Inês Alves (European Rare Bone Forum and ANDO Portugal) and Tracy Hart (Osteogenesis Imperfecta Foundation) share rare bone disease highlights from the ASBMR 2022 Annual Meeting. Downloadable educational infographics summarize their podcast highlights.
Prof. Eric Rush
Clinical Geneticist
Children’s Mercy, Kansas City, MO
United States (US)
Ms. Inês Alves
Patient advocacy
European Rare Bone Forum, Lisbon
Portugal
Ms. Tracy Hart
Patient advocacy
Osteogenesis Imperfecta Foundation
United States (US)
ASBMR 2022 Rare Bone Disease Highlights: Clinician Perspective
Podcast | 
16 min
|
Sep 2022
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ASBMR 2022 Rare Bone Disease Highlights: Patient Advocate Perspective
Podcast | 23 min
|
Sep 2022
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In these two episodes, the experts review the latest pre-clinical and clinical research findings in fibrodysplasia ossificans progressiva (FOP), hypochondroplasia (HCH), osteogenesis imperfecta (OI), and autosomal dominant osteopetrosis. The rare bone disease patient experience is elevated in discussion of the IMPACT survey in OI, as is the role of patient advocacy in keeping patient and caregiver communities informed about research.
This educational activity was developed in partnership between COR2ED and the American Society for Bone and Mineral Research, supported by an independent medical education grant from the Rare Bone Disease Consortium, represented by Alexion, AstraZeneca Rare Disease, by Ipsen and by Kyowa Kirin, who had no input into selection of topics or speakers.
Other programmes of interest
15 min
Other programmes developed by Prof. Eric Rush
Prof. Eric Rush
Clinical Geneticist
Children’s Mercy, Kansas City, MO
United States (US)
Other programmes developed by Ms. Inês Alves
Ms. Inês Alves
Patient advocacy
European Rare Bone Forum, Lisbon
Portugal
