A second international online survey to assess the ongoing impact of the COVID-19 pandemic on people living with acromegaly and endocrinologists managing all aspects of the condition. Findings from the survey were presented at NORD Rare Summit, 18th-19th October. The survey concludes that use of remote communications offers a positive shift in care patterns for people with acromegaly and their care team to manage this rare condition


The ACROCOVID II survey was developed in partnership with Sheila Khawaja and Muriël Marks from the World Alliance of Pituitary Organizations (WAPO), with HCP expertise provided by Prof. Maria Fleseriu and Prof. Mark Gurnell.

This programme is supported by an Independent Educational Grant from Ipsen

Mark Gurnell is Professor of Clinical Endocrinology in Cambridge, where he is Clinical Lead for Endocrine Services. He is Head of Section (Specialty Medicine Research & Training) in the Department of Medicine, and SubDean in the School of Clinical Medicine. His clinical and research interests are focussed on pituitary, adrenal and thyroid disorders, with particular interests in: acromegaly Cushing’s disease TSH-secreting pituitary adenomas secondary adrenal insufficiency primary aldosteronism He is head of the Cambridge Endocrine Molecular Imaging Group (CEMIG) and has led the development of novel PET tracers for imaging pituitary adenomas and adrenocortical tumours, with several now in use in routine clinical practice. He is recognised as an expert in the management of patients with unusual thyroid function tests. He currently serves on various expert committees/panels, including: Council of the UK Society for Endocrinology (Treasurer) Education Committee of the European Society of Endocrinology US Endocrine Society’s ESAP panel Royal College of Physicians (UK) Specialty Certificate Examinations Board (Endocrinology & Diabetes) He holds a number of senior appointments in medical education and chairs the Board of the UK Medical Schools Council Assessment Alliance. He leads the team of UK Assessment experts developing the forthcoming UK Medical Licensing Assessment (MLA) Applied Knowledge Test (AKT).

Prof. Maria Fleseriu has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Amryt, Camurus, Crinetics, Debiopharm, Ionis, Ipsen, and Recordati

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