Von Willebrand Disease: Recognising, Screening and Impact
Von Willebrand Disease: Recognising, Screening and Impact
In these 3 micro e-learning modules, you will learn about the potential existence of von Willebrand disease (VWD), be able to recognise the signs and symptoms, and understand how you can help diagnose and care for a patient with VWD. Watch the short videos, download the flashcards and slides, and take the assessment to check your knowledge.
In these 3 micro e-learning modules, you will learn about the potential existence of von Willebrand disease (VWD), be able to recognise the signs and symptoms, and understand how you can help diagnose and care for a patient with VWD. Watch the short videos, download the flashcards and slides, and take the assessment to check your knowledge.
Dr Vickie McDonald, Dr Rosa Sonja Alesci, Assoc. Prof. Alison Dougall, Dr Michael A Mazzeffi, Assoc. Prof. Jan Blatný, Prof. Ana Boban, Dr Gianluigi Pasta, Dr Jonathan C. Roberts
This micro e-learning programme is endorsed by:
Dr Vickie McDonald
Haematologist
Royal London Hospital and Queen Mary University of London
United Kingdom (UK)
Dr Rosa Sonja Alesci
Haematologist and Health Economist
IMD Blood Coagulation Centre
Germany
Assoc. Prof. Alison Dougall
Dental Consultant
Dublin Dental Hospital and Trinity College Dublin
Republic of Ireland
Dr Michael A Mazzeffi
Cardiothoracic Anesthesiologist and Intensive Care Physician
University of Virginia Health
United States (US)
Assoc. Prof. Jan Blatný
Paediatric Haematologist
Children's University Hospital Brno
Czech Republic
Prof. Ana Boban
Haematologist
University Hospital Centre Zagreb
Croatia
Dr Gianluigi Pasta
Orthopedic Consultant
Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di P...
Italy
Dr Jonathan C. Roberts
Paediatric and Adult Haematologist
Bleeding & Clotting Disorders Institute (BCDI)
United States (US)
Dr Vickie McDonald
Haematologist
Royal London Hospital and Queen Mary University of London
United Kingdom (UK)
Dr Vickie McDonald is a consultant haematologist at the Royal London Hospital, London, UK. Her main interests are disorders of coagulation, including ITP. She looks after patients with inherited and acquired disorders of clotting and platelets and runs specialist clinics in ITP. She is an honorary senior lecturer at Queen Mary University of London and is the national chief investigator for the UK ITP registry in addition to the PI and CI for several trials in ITP, both early and late phase studies.
Dr Vickie McDonald has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:
Abbvie, Amgen, Grifols, Novartis and Sobi.
Dr Rosa Sonja Alesci
Haematologist and Health Economist
IMD Blood Coagulation Centre
Germany
Rosa Sonja Alesci, MD, health economist, underwent medical training at the Goethe University Hospital Frankfurt, Germany. She started her internal medicine training at Mannheim University Hospital and received her MD at the Ruprecht-Karls-University of Heidelberg. She is currently the director of the IMD blood coagulation centre (Bad Homburg/Frankfurt/Wiesbaden). She deals with one of the biggest cohort of patients with VWD in Germany. She was awarded with the Achieve Program in 2010 and wass the winner of the Hermansky lecture regarding treatment of the VWD also in 2010. Since 2007, she has led and/or developed several investigational clinical trials for patients with bleeding disorders either as study chair, principal investigator or site principal investigator. She is an active member on the „Arbeitskreis Hämostaseologie“ of the German Society of Hematology and Oncology (DGHO) and member of the mecidal advisory board of the „German alliance for security of Hemophilia“. Further, she works unsalaried together with patient organisations. Her activity has been mainly focused on several aspects of clinical research in von Willebrand disease, rare bleeding disorders and ITP. In particular, she is an expert in the question of anticoagulation in patients with haemorrhagic diathesis and in treatment of pregnancy in those patients.
Dr Rosa Sonja Alesci has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:
Bayer, CSL Behring, Grifols, Novartis, Novo Nordisk, Sobi and Takeda.
Assoc. Prof. Alison Dougall
Dental Consultant
Dublin Dental Hospital and Trinity College Dublin
Republic of Ireland
Dr Alison Dougall is the Dental Consultant in Medically Complex Patients at Dublin Dental Hospital and Director of the Doctorate Programme in Special Care Dentistry at Trinity College Dublin. She educates dentists at undergraduate postgraduate and specialist level has led oral health services for people with a wide range of rare bleeding disorders at the National Coagulation Centre in Dublin for 15 years and has published a significant number of peer reviewed research papers in this area. She is the former chair of the dental committee of the World Federation of Haemophilia and is on the Medical Advisory Board of the European Haemophilia Consortium. She is currently the President of the International Society for Disability and Oral Health in 2017 she was voted the HMI Health Leader of Ireland for her work developing integrated oral health care pathways for people with inherited bleeding disorders.
Assoc. Prof. Alison Dougall has no relevant financial relationships to disclose.
Dr Michael A Mazzeffi
Cardiothoracic Anesthesiologist and Intensive Care Physician
University of Virginia Health
United States (US)
Dr Mazzeffi is a cardiothoracic anesthesiologist and intensive care physician. He is currently Vice Chair for Faculty Affairs and Development in the department of anesthesiology at University of Virginia Health. He is an active clinical researcher with an interest in hemostasis, viscoelastic coagulation testing, extracorporeal membrane oxygenation, and acquired Von Willebrand Syndrome in patients on mechanical circulatory support. He is an active teacher and mentor for medical students, anesthesiology residents and fellows.
Dr Michael A Mazzeffi has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:
Hemosonics Corporation and Octapharma.
Assoc. Prof. Jan Blatný
Paediatric Haematologist
Children's University Hospital Brno
Czech Republic
Jan Blatný, MD, PhD, is Consultant Haematologist at the Department of Paediatric Haematology and Biochemistry, Centre for Thrombosis and Haemostasis and the Director of the Haemophilia Comprehensive Care Centre of University Hospital in Brno, Czech Republic. He is also an Associate Professor of Paediatrics at Masaryk University in Brno, Czech Republic. His research interests encompass paediatric haematology, thrombosis and haemostasis, and life-threatening bleeding. He is a member of the Working Party on population PK of the ISTH SSC Subcommittee on Factor VIII and IX and Rare Bleeding Disorders. In addition to ISTH, Dr Blatný is a member of numerous national and international haematology organizations. He serves on the steering committee and is a paediatric coordinator of the Czech National Haemophilia Programme, Vice-president and a member of Executive Committee of EAHAD, member of MAG (Medical advisory group) of EHC, a reviewer for several haematology journals, and is on the editorial board for an official journal of Czech Haematology society. Dr Blatný’s publication credits are 9 book chapters and over 100 articles published in peer-reviewed journals
Assoc. Prof. Jan Blatný has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:
Novo Nordisk, Pfizer, Roche, Sobi and Takeda.
Prof. Ana Boban
Haematologist
University Hospital Centre Zagreb
Croatia
Dr Ana Boban is Head of Haemophilia Centre at the University Hospital Centre Zagreb and Associate Professor of Internal Medicine at the School of Medicine of the University of Zagreb, Croatia. She has specialist degrees in Internal Medicine and Haematology. Dr Boban’s clinical work is in the field of benign haematology with the focus on bleeding disorders and thrombosis. Dr Boban is a member of national and international scientific and medical societies in the field of haemostasis and thrombosis and is currently serving as Executive Committee member of EAHAD. Dr Boban’s research interests include clinical haemophilia, carriers of haemophilia, von Willebrand disease, anticoagulant treatments and ITP.
Prof. Ana Boban has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:
Bayer, CSL Behring, Novo Nordisk, Octopharma, Pfizer, Roche, Sobi, Swixx Biopharma and Takeda.
Dr Gianluigi Pasta
Orthopedic Consultant
Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di Pavia
Italy
Dr Gianluigi Pasta, from 2006 to 2017, worked as the orthopaedic consultant of Angelo Bianchi Bonomi Hemophilia Centre of Milan. He is now an orthopaedic consultant at the Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di Pavia, providing clinical services including musculoskeletal assessment and non-surgical and surgical treatment. Dr Pasta has been an active member of the MSK Committee of the WFH for many years and he is the current Chair of the Committee. He is the author of several published papers and book chapters covering many aspects of musculoskeletal problems of haemophilia (non-surgical and surgical). Dr Pasta is an active member of Italian Hemophilia Centres Association and is the coordinator of the MSK Group.
Dr Gianluigi Pasta has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:
Bayer, Novo Nordisk, Octopharma, Pfizer, Roche, Sobi and Takeda.
Dr Jonathan C. Roberts
Paediatric and Adult Haematologist
Bleeding & Clotting Disorders Institute (BCDI)
United States (US)
Jonathan C. Roberts, MD is the Associate Medical Director and Associate Research Director at the Bleeding & Clotting Disorders Institute (BCDI) and Assistant Professor of Pediatrics at the University of Illinois College of Medicine at Peoria in Peoria, IL, USA. Dr Roberts graduated from the Southern Illinois School of Medicine in 2008 and completed his internship and residency in Pediatrics at the University of Illinois College of Medicine at Peoria at OSF St. Francis Children’s Hospital in 2011. After finishing his residency, Dr Roberts completed fellowship in Pediatric Hematology/Oncology/Blood & Marrow Transplantation at the Medical College of Wisconsin/Children’s Hospital of Wisconsin in 2014 and worked as a post-doctoral fellow under Dr Robert Montgomery and Dr Joan Cox Gill at the BloodCenter of Wisconsin Blood Research Institute. Dr Roberts’ research areas of interest are in advancing novel laboratory assay development to improve the diagnosis of von Willebrand Disease and to enhance individualized clinical management of hemophilia. He has received numerous young investigator research awards, has over 40 peer-reviewed research publications and abstracts including lead author publications in Blood and the New England Journal of Medicine, and has had grant funding from the National Hemophilia Foundation, World Federation of Hemophilia, and NIH among others. Dr Roberts has a personal passion for the bleeding disorders community as he is also an individual with severe hemophilia A.
Dr Jonathan C. Roberts has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:
Genzyme, Novo Nordisk, Octopharma, Pfizer, Sanofi, Takeda and UniQure.
Module 1 - When to consider VWD
|
20 min
|accreditation:
EACCME |
Jun 2022
This programme was made for you: your opinion matters
Share your feedback in just 4 clicks and help us to continue to create the content you need.
I agree that this educational programme:
Was valuable to me:
1/4
Has improved my knowledge of this topic:
2/4
Is likely to change my clinical practice:
3/4
Was balanced and unbiased:
4/4
download resources
This programme was made for you: your opinion matters
Share your feedback in just 4 clicks and help us to continue to create the content you need.
I agree that this educational programme:
Was valuable to me:
1/4
Has improved my knowledge of this topic:
2/4
Is likely to change my clinical practice:
3/4
Was balanced and unbiased:
4/4
Module 2 - How to screen for VWD
|
20 min
|accreditation:
EACCME |
Jun 2022
This programme was made for you: your opinion matters
Share your feedback in just 4 clicks and help us to continue to create the content you need.
I agree that this educational programme:
Was valuable to me:
1/4
Has improved my knowledge of this topic:
2/4
Is likely to change my clinical practice:
3/4
Was balanced and unbiased:
4/4
download resources
This programme was made for you: your opinion matters
Share your feedback in just 4 clicks and help us to continue to create the content you need.
I agree that this educational programme:
Was valuable to me:
1/4
Has improved my knowledge of this topic:
2/4
Is likely to change my clinical practice:
3/4
Was balanced and unbiased:
4/4
Module 3 - How to care for a patient with VWD
|
20 min
|accreditation:
EACCME |
Jun 2022
This programme was made for you: your opinion matters
Share your feedback in just 4 clicks and help us to continue to create the content you need.
I agree that this educational programme:
Was valuable to me:
1/4
Has improved my knowledge of this topic:
2/4
Is likely to change my clinical practice:
3/4
Was balanced and unbiased:
4/4
download resources
This programme was made for you: your opinion matters
Share your feedback in just 4 clicks and help us to continue to create the content you need.
I agree that this educational programme:
Was valuable to me:
1/4
Has improved my knowledge of this topic:
2/4
Is likely to change my clinical practice:
3/4
Was balanced and unbiased:
4/4
This micro e-learning programme consists of three modules aiming to increase awareness, knowledge and understanding of the existence, diagnosis, treatment and implications of VWD among healthcare professionals outside of haematology.
Upon completion of the three modules, you will:
-
be aware of the potential existence of VWD in your patient population
-
be able to recognise the signs and symptoms of von Willebrand disease
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understand how to search for VWD, effectively using the screening tools available and signposting patients towards earlier diagnosis
-
be aware of the impact of VWD on other care
HEMOSTASIS CONNECT is an initiative of COR2ED, supported by an Independent Educational Grant from Takeda, Viatris and Sobi.
Other programmes of interest
Other programmes developed by Dr Vickie McDonald
Dr Vickie McDonald
Haematologist
Royal London Hospital and Queen Mary University of London
United Kingdom (UK)
Other programmes developed by Dr Michael A Mazzeffi
Dr Michael A Mazzeffi
Cardiothoracic Anesthesiologist and Intensive Care Physician
University of Virginia Health
United States (US)