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Von Willebrand Disease: Recognising, Screening and Impact

In these 3 micro e-learning modules, you will learn about the potential existence of von Willebrand disease (VWD), be able to recognise the signs and symptoms, and understand how you can help diagnose and care for a patient with VWD. Watch the short videos, download the flashcards and slides, and take the assessment to check your knowledge.

Dr Vickie McDonald, Dr Rosa Sonja Alesci, Assoc. Prof. Alison Dougall, Dr Michael A Mazzeffi, Assoc. Prof. Jan Blatný, Prof. Ana Boban, Dr Gianluigi Pasta, Dr Jonathan C. Roberts

This micro e-learning programme is endorsed by:

Dr Vickie McDonald

Haematologist

Royal London Hospital and Queen Mary University of London

United Kingdom (UK)

Dr Rosa Sonja Alesci

Haematologist and Health Economist

IMD Blood Coagulation Centre

Germany

Assoc. Prof. Alison Dougall

Dental Consultant

Dublin Dental Hospital and Trinity College Dublin

Republic of Ireland

Dr Michael A Mazzeffi

Cardiothoracic Anesthesiologist and Intensive Care Physician

University of Virginia Health

United States (US)

Assoc. Prof. Jan Blatný

Paediatric Haematologist

Children's University Hospital Brno

Czech Republic

Prof. Ana Boban

Haematologist

University Hospital Centre Zagreb

Croatia

Dr Gianluigi Pasta

Orthopedic Consultant

Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di P...

Italy

Dr Jonathan C. Roberts

Paediatric and Adult Haematologist

Bleeding & Clotting Disorders Institute (BCDI)

United States (US)

Biography Disclosures

Dr Rosa Sonja Alesci

Haematologist and Health Economist

IMD Blood Coagulation Centre

Germany

Rosa Sonja Alesci, MD, health economist, underwent medical training at the Goethe University Hospital Frankfurt, Germany. She started her internal medicine training at Mannheim University Hospital and received her MD at the Ruprecht-Karls-University of Heidelberg. She is currently the director of the IMD blood coagulation centre (Bad Homburg/Frankfurt/Wiesbaden). She deals with one of the biggest cohort of patients with VWD in Germany. She was awarded with the Achieve Program in 2010 and wass the winner of the Hermansky lecture regarding treatment of the VWD also in 2010. Since 2007, she has led and/or developed several investigational clinical trials for patients with bleeding disorders either as study chair, principal investigator or site principal investigator. She is an active member on the „Arbeitskreis Hämostaseologie“ of the German Society of Hematology and Oncology (DGHO) and member of the mecidal advisory board of the „German alliance for security of Hemophilia“. Further, she works unsalaried together with patient organisations. Her activity has been mainly focused on several aspects of clinical research in von Willebrand disease, rare bleeding disorders and ITP. In particular, she is an expert in the question of anticoagulation in patients with haemorrhagic diathesis and in treatment of pregnancy in those patients.

Dr Rosa Sonja Alesci has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Bayer, CSL Behring, Grifols, Novartis, Novo Nordisk, Sobi and Takeda.

Biography Disclosures

Assoc. Prof. Alison Dougall

Dental Consultant

Dublin Dental Hospital and Trinity College Dublin

Republic of Ireland

Dr Alison Dougall is the Dental Consultant in Medically Complex Patients at Dublin Dental Hospital and Director of the Doctorate Programme in Special Care Dentistry at Trinity College Dublin. She educates dentists at undergraduate postgraduate and specialist level has led oral health services for people with a wide range of rare bleeding disorders at the National Coagulation Centre in Dublin for 15 years and has published a significant number of peer reviewed research papers in this area. She is the former chair of the dental committee of the World Federation of Haemophilia and is on the Medical Advisory Board of the European Haemophilia Consortium. She is currently the President of the International Society for Disability and Oral Health in 2017 she was voted the HMI Health Leader of Ireland for her work developing integrated oral health care pathways for people with inherited bleeding disorders.

Assoc. Prof. Alison Dougall has no relevant financial relationships to disclose.

Biography Disclosures

Assoc. Prof. Jan Blatný

Paediatric Haematologist

Children's University Hospital Brno

Czech Republic

Jan Blatný, MD, PhD, is Consultant Haematologist at the Department of Paediatric Haematology and Biochemistry, Centre for Thrombosis and Haemostasis and the Director of the Haemophilia Comprehensive Care Centre of University Hospital in Brno, Czech Republic. He is also an Associate Professor of Paediatrics at Masaryk University in Brno, Czech Republic. His research interests encompass paediatric haematology, thrombosis and haemostasis, and life-threatening bleeding. He is a member of the Working Party on population PK of the ISTH SSC Subcommittee on Factor VIII and IX and Rare Bleeding Disorders. In addition to ISTH, Dr Blatný is a member of numerous national and international haematology organizations. He serves on the steering committee and is a paediatric coordinator of the Czech National Haemophilia Programme, Vice-president and a member of Executive Committee of EAHAD, member of MAG (Medical advisory group) of EHC, a reviewer for several haematology journals, and is on the editorial board for an official journal of Czech Haematology society. Dr Blatný’s publication credits are 9 book chapters and over 100 articles published in peer-reviewed journals

Assoc. Prof. Jan Blatný has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Novo Nordisk, Pfizer, Roche, Sobi and Takeda.

Biography Disclosures

Dr Gianluigi Pasta

Orthopedic Consultant

Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di Pavia

Italy

Dr Gianluigi Pasta, from 2006 to 2017, worked as the orthopaedic consultant of Angelo Bianchi Bonomi Hemophilia Centre of Milan. He is now an orthopaedic consultant at the Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di Pavia, providing clinical services including musculoskeletal assessment and non-surgical and surgical treatment. Dr Pasta has been an active member of the MSK Committee of the WFH for many years and he is the current Chair of the Committee. He is the author of several published papers and book chapters covering many aspects of musculoskeletal problems of haemophilia (non-surgical and surgical). Dr Pasta is an active member of Italian Hemophilia Centres Association and is the coordinator of the MSK Group.

Dr Gianluigi Pasta has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Bayer, Novo Nordisk, Octopharma, Pfizer, Roche, Sobi and Takeda.

Biography Disclosures

Dr Jonathan C. Roberts

Paediatric and Adult Haematologist

Bleeding & Clotting Disorders Institute (BCDI)

United States (US)

Jonathan C. Roberts, MD is the Associate Medical Director and Associate Research Director at the Bleeding & Clotting Disorders Institute (BCDI) and Assistant Professor of Pediatrics at the University of Illinois College of Medicine at Peoria in Peoria, IL, USA. Dr Roberts graduated from the Southern Illinois School of Medicine in 2008 and completed his internship and residency in Pediatrics at the University of Illinois College of Medicine at Peoria at OSF St. Francis Children’s Hospital in 2011. After finishing his residency, Dr Roberts completed fellowship in Pediatric Hematology/Oncology/Blood & Marrow Transplantation at the Medical College of Wisconsin/Children’s Hospital of Wisconsin in 2014 and worked as a post-doctoral fellow under Dr Robert Montgomery and Dr Joan Cox Gill at the BloodCenter of Wisconsin Blood Research Institute. Dr Roberts’ research areas of interest are in advancing novel laboratory assay development to improve the diagnosis of von Willebrand Disease and to enhance individualized clinical management of hemophilia. He has received numerous young investigator research awards, has over 40 peer-reviewed research publications and abstracts including lead author publications in Blood and the New England Journal of Medicine, and has had grant funding from the National Hemophilia Foundation, World Federation of Hemophilia, and NIH among others. Dr Roberts has a personal passion for the bleeding disorders community as he is also an individual with severe hemophilia A.

Dr Jonathan C. Roberts has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Genzyme, Novo Nordisk, Octopharma, Pfizer, Sanofi, Takeda and UniQure.

Module 1 - When to consider VWD

time | open 20 min |accreditation: EACCME | Jun 2022

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Module 2 - How to screen for VWD

time | open 20 min |accreditation: EACCME | Jun 2022

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Module 3 - How to care for a patient with VWD

time | open 20 min |accreditation: EACCME | Jun 2022

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This micro e-learning programme consists of three modules aiming to increase awareness, knowledge and understanding of the existence, diagnosis, treatment and implications of VWD among healthcare professionals outside of haematology.

Upon completion of the three modules, you will:

be aware of the potential existence of VWD in your patient population
be able to recognise the signs and symptoms of von Willebrand disease
understand how to search for VWD, effectively using the screening tools available and signposting patients towards earlier diagnosis
be aware of the impact of VWD on other care

This course has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®) and ECMEC® is available. Through an agreement between the European Union of Medical Specialists (UEMS) and the American Medical Association (AMA), physicians may convert EACCME credits to an equivalent number of AMA PRA Category 1 Credits™.

HEMOSTASIS CONNECT is an initiative of COR2ED, supported by an Independent Educational Grant from Takeda, Viatris and Sobi.

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