Rare diseases

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  • Rare diseases (80)

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Leading experts, collaborating with us, develop a variety of educational programmes in the field of rare diseases. Explore the latest programmes to support your clinical decision-making.

Programmes in Rare diseases

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podcast Video podcast
Rare diseases 
Think narcolepsy: Why early recognition and referral matter in an evolving treatment landscape

Optimising diagnostic pathways

Experts
Dr Markus Schmidt, Dr Anna Heidbreder
  • download Downloadable
    Resources
  • clock 17 MIN
  • calendar Jun 2026
  • Non-accredited Independent Medical Education
SLEEP CONNECT
Educational programme supported by an Independent Educational Grant from Takeda.
Infographic / Flashcard
Oncology Rare diseases 
EP-NEC at a glance

Understanding EP-NEC, emerging treatments, and patient care strategies

Experts
Meredith Cummins
  • download Downloadable
    Resources
  • clock 1 MIN
  • calendar May 2026
COR2ED
This programme has been sponsored by Boehringer Ingelheim
expert-video-animation Animated Video
Rare diseases 
Evolving care in narcolepsy type 1

The emergence of orexin-targeted therapies

Experts
Prof. Yves Dauvilliers
Endorsed by
ANC Reference centre
  • download Downloadable
    Resources
  • clock 6 MIN
  • calendar Apr 2026
  • Non-accredited Independent Medical Education
SLEEP CONNECT
Educational programme supported by an Independent Educational Grant from Takeda
conference-update Conference update

Episode

2

of 2

episode
Oncology Rare diseases Endocrinology 
Actualités du Congrès l’ENETS 2026

Points de vue d’experts sur les dernières données concernant le cancer neuroendocrinien

Experts
Prof. Louis de Mestier, Prof. Timon Vandamme, Dr Alice Durand
  • clock 5 MIN
  • calendar Mar 2026
  • Non-accredited Independent Medical Education
NET CONNECT
Cette vidéo est soutenue par une subvention indépendante à visée éducative d’Ipsen.  Les contenus publiés sur ce site internet sont sous la responsabilité de leurs auteurs. Certaines données scientifiques publiées sur ce site sont susceptibles de ne pas être validées par la commission d’Autorisation de Mise sur le Marché, et ne doivent pas être mises en pratique. Elles doivent être lues et comprises avec le plus grand discernement et sont données dans leur cadre de la diffusion de l’information sur l’état actuel de la recherche auprès de la communauté scientifique internationale  
conference-update Conference update

Episode

1

of 2

episode
Oncology Rare diseases Endocrinology 
Update from ENETS 2026

Experts share their views on latest data in neuroendocrine cancer

Experts
Prof. Louis de Mestier, Prof. Timon Vandamme, Dr Alice Durand
  • clock 5 MIN
  • calendar Mar 2026
  • Non-accredited Independent Medical Education
NET CONNECT
This educational programme is supported by an Independent Educational Grant from Ipsen. The content published on this website is under the responsibility of its authors. Some scientific data published on this website may not have been validated by the relevant Marketing Authorisation Committees and should not be put into practice. It should be read and understood with the utmost discernment and is provided for the purpose of disseminating information on the current state of research to the international scientific community.
patient-support Patient Support
Rare diseases 
Understanding narcolepsy

Persistent sleepiness: when to look closer

Experts
Prof. Yves Dauvilliers
Endorsed by
EU-NN ANC
eNAP
  • clock 2 MIN
  • calendar Jan 2026
  • Non-accredited Independent Medical Education
SLEEP CONNECT
Educational programme supported by an Independent Educational Grant from Takeda
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